First Name :   Dayyan
Email Address :   fite_2508@yahoo.co.id
Date :   17th may 2009
Comments :   Hi, My baby & me got MHE, my baby is a year now & im 30years old.. Its nice knowing that were not alone in this world whose got MHE. I hope by join this group, my baby & me will get more support to live our live.
First Name :   Pamela
Email Address :   navefam@comcast.net
Date :   4/15/09
Comments :   Hi! i just met a girl with a very seious case of MHE.
First Name :   Pamela
Email Address :   navefam@comcast.net
Date :   4/15/09
Comments :   Pamela rocks
First Name :   Anne Marie
Email Address :   ahanner@comcast.net
Date :   02/04/09
Comments :   Thank you for caring so much about these children. God Bless~
First Name :   Marisa
Email Address :   normgrin@verizon.net
Date :   May 23, 2008
Comments :   Hi, Today I met a 4-year old child with serious bumps on one of his tiny wrists and, for the first time in my life, heard of exostoses. I have a question, do you have info in Spanish? Thanks
First Name :   Marsha
Email Address :   marshacv@sbcglobal.net
Date :   May 12, 2008
Comments :   My grand-daughter, who will be 2 in June was recently diagnosed with MHE... our family is still a little shocked at this... Thank you for providing a website that shows the human/personal side of the disease. hugs to all, marsha
First Name :   mechele
Email Address :   mechelemcossey@yahoo.com
Date :   2-28-08
Comments :   Thanks for the helpful info. You have helped me explain this to my kids and others. Thank you for giving us hope.
First Name :   Brenda
Email Address :   bk_ramirez@hotmail.com
Date :   02/07/2008
Comments :   My 4 year old son has MHE and its so hard for me to explain why his bones arent like the other kids at school. I dont treat him any different as a matter of fact I let him know its just the way his bones are. When he gets older I will explain it all to hi
First Name :   Zoe
Email Address :   zoe.m.t@hotmail.co.uk
Date :   1st Feb 2008
Comments :   We have just recently found out that my 4yr old son has MHE and is due to have his 1st op very soon. It was really interesting to read the site and the information everyone has written. Thank you xx
First Name :   Brin
Email Address :   none
Date :   none
Comments :   Hello, nice site :)
   Next 10
Return to Web Site | Sign Guestbook